In 2019, Jomo Martin Nkunika turned 40. This Urbana Frederick, Maryland based family man has led an active life full of vigor. He loves God, loves people, and loves life. Unfortunately, in 2019, he received a life-threatening and life-altering diagnosis of sporadic (not genetic) Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. Of course, he had to deal with the shock of this overwhelming diagnosis, especially considering that he was a healthy young man and had never been seriously sick in his medical history. As a husband, father of a four-year-old son and one-year-old daughter, he had to make up his mind to fight this motor neuron disease with determination. The facts are that this disease is ruthless with an average life span of 3-5 years after diagnosis. It slowly and progressively robs its victims of the ability to walk, use arms/hands, talk, swallow, and ultimately breathe.
Jomo has decided to fight the good fight of faith and confront this diagnosis head-on. He likes to say; “He has ALS but ALS does not have him.” Currently, he is an ALS advocate and Healthcare activist involved in raising awareness of ALS, and trying to enroll in clinical trials and access promising experimental medications.
Jomo is a multi-faceted individual. Professionally, he worked as program director and adjunct professor of the Sleep Medicine Technology program at Montgomery College (MC), in Maryland, and a clinical manager with MedBridge Health at Frederick Memorial Hospital Advanced Center of Sleep Studies.
Jomo attended the University of Maryland Global Campus (UMGC) where he obtained a master of science degree in health care administration. He also has a bachelor of science degree in applied sciences and technology with an emphasis on health services technologies from Thomas Edison State University (TESU). In addition, Jomo holds associate degrees in electronics engineering, polysomnographic technology, and general education studies from the UNIMA- Polytechnic, TESU, and MC respectively.
Jomo is an active member of Cedarbrook community church in Clarksburg Maryland, where he played piano on the worship team. Also, Jomo is involved in non-profit work. He serves as board member with the Washington DC-based Board of Registered Polysomnographic Technologists (BRPT).