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We would like to thank you in advance for any financial support you can provide along with continued prayers and well wishes. According to the national ALS association, it costs at-least $200,000 to live with this disease, ALS. Costs range from equipment, treatments, home modifications, and many more. Please, donate as you are able to.
Specially, Jomo needs to raise at least $100,000 in order to access some available costly ALS treatments outside of the United States but are not covered by insurance since they are not yet FDA approved. The other promising treatment NurOwn by Brainstorm Therapeutics Inc is undergoing phase 3 clinical trial in the United States, and may not get FDA approved until 2022. With your generosity, Jomo will be able to get the most advanced regulatory-approved ALS treatment in the world. It’s a stem cell treatment called Neuronata-R by Corestem and is only available at Hanyang Medical University which is one of the leading private research universities of South Korea in Seoul. The stem cells are derived from each patient’s own bone marrow and do not involve embryonic stem cells in any way. There are also somewhat similar treatment options in Beijing, China and Guadalajara, Mexico.